After seeing every other patient on the ward home before him, it was finally Noah's turn.
He first had his staples taken out this morning and put up quite a fight needing three of us to hold him down - he then apologised to the nurse for the fuss!
I changed his ileostomy bag for the second time and he now has a more child sized bag. We have strict instructions to measure his pooh (the joys of parenting!) and we have to aim to keep the output between 250 and 350ml day, any more and we have to contact the surgical registrar to see if he needs IV fluids again, any less and we have to cut his loperamide dose. We are going to get good care from the district nurses - one phoned after I'd only been home for an hour.
Noah said the things he wanted most about home were his own bed and an internet connection (for google maps) but he is now tucked up in Lily's bed listening to the script for this years Christmas play.
Paul is away at a clinic in New Plymouth and gets back tonight, Joe and Rachel arrive tomorrow and Sam, Anika, Beth and James on Saturday - I am just beginning to realise how much there is to do to prepare for Christmas but thought I would first update the blog with our good news.
I have promised Noah we will take a Xmas photo of all the family around him singing "All I want for Christmas is YOU".
143 days....Weird Goal, huh?
5 days ago